BLOG COMMENTS

Good Monday Morning To All of You!!

I want all of you to know that I read ALL of the comments that are left on the blog. I love all the comments - the funny ones and the cheerful ones and the heartfelt ones (although I know they are all heartfelt). I am overwhelmed with all your love and support and ALL the incredibly nice things you say about me. How awesome it is that I have you all fooled! Like taking candy from a baby!

Really, I am glad that so many of you are on this journey with us. I would never want to do this alone and I can’t fathom how people do. Your comments are uplifting and feed my soul. Thank you so much.

I try every day to make each day a great day despite everything going on. I guess it helps that I am generally a pretty positive person.

I need some prayer. I would like to protect the boys privacy as much as possible unless of course I have some outrageous fart story or far out comment from them. I just wanted you to know that I am beginning to see some signs of struggling with one of the boys. We had a very hard weekend and I think things have calmed down now after spending time with Gary. Gary is amazingly wonderful when he talks to the boys about the cancer. He is so down to earth with them.

All along we have been very real with the boys and have been extremely honest with them. I think things will stabilize once we get Gary home and they can be with him more.
So, please just keep all three of them covered in your prayers.

So, Gary had a GREAT day yesterday. He actually walked 240 feet – so I hear. I spent the morning at church and then 6 ½ hours at the baseball field watching 2 games! OMG – just take me out of my misery! Usually I do not feel like that but with Gary in the hospital and housework to be done and errands to be run I felt like I wasted an entire day. But, just when I feel that way the boys tell me how great it was that we spent the day together! Then the guilt sets in deeply and I regret wanting to try to keep up with my life and all the trivial things I want to be doing to keep ahead! I just need to let go sometimes and focus on what is really important.

Last night when Zach and I arrived we brought Gary an IN & Out burger! He ate over ½ of it. The feeding tube feeds him during the night and we have to get him eating during the day. His potassium level was too high so they switched his feeding bag to another formula with more calories and less potassium. He weighs a mere 140 which is 28 pounds down. I figure some Big O To Go, A’s Burgers, cakes from Steph, Angela and Stacy and apple fritters will do the trick!

Well, the great day did last for about 24 hours but like I told you every day brings something different. Today – not as great. Gary was up most of the night with the pain in his leg – probably from overdoing it! Then, I saw him shivering when Zach and I were leaving and we discovered that he has a 102.3 degree fever. Here we go. Back to the whole fever thing. It is such a pain in the rear to deal with this especially when we are trying to get procedures done and also trying to get home!

So, hopefully the afternoon will be better. He is sleeping next to me right now and he is going to have another chest x-ray and then the nerve block.

Guess what? I am in the Hoag Wi-Fi area and Gary is already getting the nerve block. He has zero recollection of the past one which was done a week ago so obviously the versed worked.

Nate will spend the night tonight. The amount of money I spend on that toll road should fund the dang thing for a year! I think I would spend the same amount in gas if I just took the freeway given the traffic and extra mileage so I am sure it is a wash.

Also, the complete and utter ridiculousness of paying $29.95 every 5 days for TV is mind blowing. I would never even spend that much for cable at home! The total amount spent so far totals over 3 months worth of cable! For those of you who have supported us I am so sorry for wasting money like that! You don’t realize how important TV is until that is all you have to entertain you!

I have to get back to the room and wait for Gary.

All of your prayers are so appreciated!

Much Love,
Lisa