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Well. We are 36 days in at Hoag and I wish I could tell all of you that we have a discharge plan. Aetna seemed to think today that Gary needed to be released within the next 24 hours or they would not provide coverage for him at Hoag! The audacity!
After numerous phone calls my sweet Aetna advocate Susan assured me that Gary would continue to be covered and I should not be worrying about that. So, I will take her word for it and not worry. After all, I do have bigger things that I need to focus on, right?
Gary was not emotionally in the greatest of places today. Who could blame the poor guy! He has been through absolute HELL and he is tired and weak and emotionally distraught. So, we had a "meeting of the minds" if you will and we came to yet another understanding of what we are doing here. Gary wants to fight and he is fighting narcotics, pain, weakness, atrophy of all of his muscles, discomfort, infections, maggots, wounds, drains and the list goes on and on.
It is not that he does not want to fight because he wants to more than anything but he is tired. I guess if I were on the narcotics he is on and had radiation and chemo and antibiotics to fight infections I would be tired too. I am tired just telling you about it!
When I left at 1:30 he was in a much better place. He had a nerve block this morning and we are waiting to see if it worked. His thyroid test came back and it is out of whack. The normal TSH level is 4 and Gary is at 36. It will take a while for the new meds to kick in and correct that problem.
I came home to hang with the boys and get some work done. I was successful and will switch places with my Mom at 7:30 PM.
School is going well for the boys and they really enjoyed shaving Gary's head last night. Unfortunately, Gary is losing his eyebrows, eyelashes and the rest of his body hair as well. It's only hair and it will grow back. That's what I keep telling myself.
I better go and get the boys ready for their 7:30 bedtime!
Please pray for Gary's emotionaly well-being. He needs a boost and hopefully if all of us pray for that the good Lord will bring it!
Hugs and Kisses to everyone.
Love, L
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3 comments:
My mom's hair came back pretty quickly after her numerous bouts with chemo, Lisa. It was a great shade of silver - a bit different! It was more fine and softer than before, so she actually liked it. She lost all of her hair, including eyebrows. I think she kept her eyelashes. Don't worry about all of this...it's temporary and a small inconvenience, all considered. Besides, you can start shopping for some pretty cool hats!
Scott
My mom joked that my dad looked like Uncle Fester from the Adams Family when he lost his hair, eyebrows, and eye lashes. The last two were the ones that weirded her out the most.
As Scott said, my dad's hair didn't take too long to come back, and it too was much finer and softer. It felt great to run your fingers through! We were actually shocked to find out how dark it was when it came back. (He was already getting pretty grey, so we weren't sure what it would look like.)
Hang in there. You and your family are always in my prayers. It sounds like you're all being so strong! Best wishes on the continuation of fighting such a hard battle.
Thinking of you!
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