Transfusions, MRI's and more.......

I am so happy to be blogging right now. It has been a very long day from sun up to sun down and beyond. I am actually sitting down for once. Don't get me wrong. I do sit in the doc office but it is not the same. There is always something to do there.

We were running late today and Gary was getting hydration and he was done so we got him into his wheelchair and proceeded to ask Kristen to unhook so we could run. We thought we could escape without blood work. We were wrong and now we have to be at Hoag tomorrow morning (bright and early) to get blood transfusions. His blood count fell fast this time. I was a little shocked only because he looks so great. He must have what we call the "chemo tan". Chemo sometimes gives you a flushed appearance.

So, blood transfusions and then back to the Birch office by 10:45 for an MRI of Gary's spine that should take upwards of 2 hours. Needless to say it will be another long day for both of us.

The boys are looking forward to the weekend. They LOVE Fridays and so do I! No lunch packing and clothes washing and homework for 2 hours every day. No waking them early and rushing out to doctor appointments. It will be a nice break. Just pray that we stay out of the hospital this weekend.

Gary has a 103 degree fever right now. I gave him Tylenol and am watching him. I hope he does not start shaking because I did not even think to ask Dr. Barth for steroids to stop the shaking. When he was in the hospital he had to have the steroids all the time for the shaking and they worked beautifully.

We had an appointment with Dr. Ashkenaze on Wednesday. He is the Neurosurgeon that will implant the pain management system. He was so nice and so caring and we both instantly liked him. He ordered this MRI that will be done in Barth's office tomorrow and we will proceed from there. Gary will be in the hospital 1-2 days following the procedure. In the meantime we will keep him doped up on all of his pain meds in hopes to keep him somewhat and sometimes semi comfortable.

I am going to go get Nate now and bring him downstairs so that I can go to sleep hopefully. The boys take turns sleeping in our room downstairs but I don't like to get them until I am close to turning the lights out. They go to bed at 7:30 each night and hopefully we do not keep them awake too much during the course of the night hours.

Nate did something that brought tears to my eyes. Quiet little Nate. Reserved is sometimes how I perceive Nate. Picture this. I am driving and the boys are all in the backseat. It is quiet and out of nowhere Nate busts out in TRUE RAPPER STYLE - the movement, the voice, the tone, the everything. You have to say it to yourself anunciating the words, sharp and hard.

Twinkle Twinkle Little Star. How I wonder what you are. Yo Yo.

Is Nate part Brother or what? It was just what I needed. Where in the world did that come from? Is that a Guitar Hero thing or a Rock Band thing? Whatever it is IT WAS FUNNY!

On that note, Goodnight and Sleep Tight!

Remember to say your prayers!
Love,
L