World's Scariest Roller Coaster

So I found out where the World's Scariest Roller Coaster is! IT IS OUR LIFE!
This update is part of a continuing saga that seems unending.
Before I start I have a need. I need referrals from anyone who knows a Medical Oncologist who is awesome. I have recently found out that there are so many types of oncologists - who knew!
So, we need a MEDICAL ONCOLOGIST. I would like to gather 2nd and 3rd opinions before we proceed.

Here it is in a nutshell........

First it was the left hip, right hip and spine.
Then it was only the left hip with necrosis in the right and nothing on the spine.
NOW...........drumroll please ................
He has sacral illiitous (inflamation) in his left hip with no apparent metatastic bone disease (this is where all of his pain is)
Nothing in the spine
The right hip that had nothing before now has findings consistent with Metastic Disease. (no pain in this hip)

So, I ask as any halfway intelligent person would, does he have cancer in his bone?
Well, they answer, the findings are consistent with that and we also factor in that he has had bladder cancer.
I did not get a YES answer.

So, where are we you might ask? ON OUR WAY TO THE LOONEY BIN!

I am so tired of this as I am sure Gary is too!

Here is how we proceed from here...........
I spoke with our GP - Dr. Tim Houston at Oso Niguel Medical. What a great doctor! He has been so supportive and calls Gary frequently to check in and see if he can help!
Dr. Houston has said as of right now we have no set diagnosis. He is disappointed that we have not had a QB helping to run these plays for us! This is where he says the Medical Oncologist comes to play.
We will see Dr. John Fruehauf at UCI on Friday who is a Medical Oncologist.
He should be able to give us accurate information. Hopefully we can get him to biopsy the area to make certain it is what it is - whatever it is.
So, I need more opinions after this one on Friday. This is how you can help. With the connections everyone has I hope to get several names to research so that I can get these appointments set.


In the meantime, we keep Gary comfortable and we keep going!
KEEP YOURS PRAYERS COMING for peace and strength as well as for patience and faith.
Regardless we are in the hands of God and as I told you before he will not leave us!

I have to take Zach to Gamestop as promised to research War Games that don't have too much blood and realistic violence - is there such a game I wonder!

I will keep updating to make sure to keep checking in!

We love all of you and thank you for your prayers! WE NEED THEM AND WANT THEM! Even the popcorn ones!

Love, L

PS - THE KIDS HAVE NOT BEEN TOLD ANYTHING RIGHT NOW! :)